Inclusion body myositis is a very rare disease, estimated to affect between 5 and 10 people in 1 million. Because of this, very little is known about the cause and there are no treatments that have been demonstrated to work. Fortunately, there is research being conducted under the sponsorship of two organizations: The Myositis Association, and the Muscular Dystrophy Association. IBM typically affects men more often than women and usually is diagnosed in the prime of life (58 to 60 years old), although most people who have been diagnosed will state that they had noticed symptoms for many years before. It is a very slow-moving illness, however it continues to progress throughout a person’s life. In my case, I noticed symptoms when I was 45, was diagnosed at age 55, and by age 65 had lost my ability to walk or stand.