Oct 092012
 

Beth at Sunshine Week One

Beth in the patio of the memory care facility shortly after moving in.

I really appreciate the words of sympathy and encouragement that I have received regarding the latest setback in our lives. I wish I could say that Beth is adjusting to life in the memory care facility, but so far she is not. Just 5 days after moving in, she tried to get up in the middle of the night because she thought I was in the room and wasn’t answering her. She fell and was transported to the hospital. Fortunately no broken bones, just bruises.
I am now trying to learn more about her disease. Not easy since the doctors couldn’t give us a diagnosis beyond some kind of dementia with psychosis but not Alzheimer’s. I’m trying to find a caregiver support group. Not being able to drive and having the terrible public transit system that we do in San Diego just makes matters more complicated. The one good thing about all of this is that I go days at a time without even remembering that I have iInclusion Body Myositis (or that Beth has Myotonic Muscular Dystrophy).

  4 Responses to “Getting to Know Yet Another Illness”

  1. And they call this “the golden years” and “LIFE” , Trying to make the best of it for
    whats dealt to us…\ Hope your doing okay & keeping busy with your articles etc.

  2. So sorry to hear of Beth’s latest difficulty. Life just seems so totally unfair at times, and as though some people (both you and Beth) get way more than their share of difficulty. By the way, I thought the photo you posted of Beth 39 years ago (your post before the current one) was lovely. I think this one in the hat here is nice too. I hope in due time she is able to adjust to her new surroundings.

  3. Hi Mike,
    I have been thinking about you and Beth a lot. My heart goes out to you both. Please give Beth a hug for me and while your at it, give your self one from me too (If that is possible!) Love and warm thoughts, Helen

  4. Thanks everyone, right now Beth is fighting off pneumonia (what’s next?) And so our visits have been short and not so sweet. I’m looking forward to better weather and better health next week.

    Mike

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